Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Florida Teacher Killed by Hurricane Helene – Tragic Final Moments Revealed
Donna Fagersten had taken refuge at a friend’s home on the top floor as Hurricane Helene tore through northern Florida, leaving a devastating trail of destruction and more than 100 casualties in the southeastern U.S.
As the storm appeared to calm, the 66-year-old teacher, just days away from her retirement, made a fateful choice to return home to rescue her cat.
When Hurricane Helene hit Florida on September 26, 2024, around 11 p.m., the Category 4 storm triggered flash floods, forcing residents to scramble for safety. One of the hardest-hit areas was Pinellas County, particularly in the Tampa Bay region, where at least 11 people lost their lives.
Among the victims was Donna Fagersten, a second-grade teacher from Ponce De Leon Elementary in Pinellas County.
According to her best friend Heather Anne Boles, Donna was set to retire the following week after dedicating 35 years to teaching. When the storm hit, Donna sought shelter with Boles and her partner, Mike Moran. As the storm surge rushed in, they retreated to the third floor of Boles’ mother’s home, across from the beach where Donna lived.
Boles recalled that as the storm seemed to settle, Donna insisted on going home to check on her cat, despite Boles’ pleas to stay. Tragically, another surge and high winds returned, battering the coastline.
A neighbor later came to their shelter, reporting that someone had been found floating in the parking garage. They quickly pulled Donna from the water and began CPR, but despite their efforts and the arrival of fire rescue by boat, they were unable to revive her.
Detectives later confirmed that Donna had drowned in her home, which had been flooded with water.
Family and friends have since remembered Donna as a “beautiful person” who was deeply committed to her students and community. In a Facebook post, Mary Gleason Lyons, a colleague and friend, described Donna as a dedicated teacher with a big heart, touching the lives of many students over her 35-year career.
Online tributes poured in, with former students and friends expressing their sadness at her passing and remembering her kindness and warmth.
While Boles and Moran are now left to clean up after the floods, which destroyed most of their belongings, the loss of their best friend is what hurts the most. “This is the worst we have ever seen,” Boles said, reflecting on the storm’s destruction compared to Hurricane Irma, where they managed to keep their home and belongings intact.
On a positive note, Donna’s cat survived, and her friends are working to find him a new home.
Hurricane Helene, which cut a destructive 800-mile path northward, left more than 2 million homes without power and claimed over 100 lives, according to USA Today.
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