Tessa Evans, who was born on February 14, 2013, was born without a nose, a rare condition that has sparked admiration and affection from her family and people around the world.
Tessa’s unique condition is known as Bosma Arhinia Microphthalmia Syndrome (BAMS) and there are fewer than 100 documented cases worldwide. Despite the rarity and complexity of her condition, her mother praises Tessa’s “charming” behavior and her “remarkable courage”.
Eight years into her journey, Tessa has become a symbol of resilience. She continues to do well and embrace life to the fullest, despite the challenges presented by her condition, which includes the inability to smell or breathe through her nose.
However, she can still cough, sneeze and catch colds. “It was pretty amusing the first time she sneezed”, recalls her father Nathan, “but we realized it was actually coming from her chest, which was a small but reassuring sign of normality”.
Tessa’s parents, Grainne and Nathan Evans, were stunned when their Valentine’s baby was born without a nose as the pregnancy was uneventful and there were no signs of problems.
A native of Maghera, Ireland, Tessa’s condition required immediate medical intervention. At less than two weeks old, she underwent surgery to insert a tracheostomy tube so she could eat and sleep comfortably.
At just two years old, Tessa achieved a medical milestone when she became the first person to receive a cosmetic nasal implant, marking a significant advance in the field and a remarkable solution to her rare condition.
25 Years Later They Laugh At Critics Who Said Marriage Wouldn’t Last
There are many people who get married despite the fact that critics may doubt their ability to stay married for the long term. This often happens when we get married quickly or perhaps we are young and people don’t think we are yet responsible enough for the bond.
In 1995, there was a young couple who also were doubted but they ended up getting married and they stayed married for 25 years. They also were the first couple with Down syndrome in the UK to become husband and wife.
These days, we hear about people who have Down syndrome getting married on a regular basis. At that time, however, it was unheard of and it was the first time in the world that a couple with Down syndrome said I do.
Just like any other disability, however, those with Down syndrome have the ability to beat the odds, and certainly, that is what Tommy and Maryanne Pilling did. In fact, they are an inspiration to many who wonder if they have what it takes.
Maryanne was born in 1971. Her mother, Linda Martin, provided her with a loving atmosphere at home and she also had a sister who loved her as well. There were still times, however, when she struggled in life and she was even rejected by her father.
Since she was raised in a loving household, however, she grew up to be a very loving woman. It was easy to see in her lively personality.
Tommy was born in 1958 and was an only child. When he was 12 years old, he became an orphan and he grew up in a care home in Essex. He did have delayed development because of a lack of a support system, and he didn’t care much for his physical appearance.
When the two of them met in 1990, they were working in a kitchen in a training home for disabled individuals. He was 32 and she was 19 at the time.
It was easy to see how Maryanne felt about Tommy because she would absolutely light up when she spoke about him. They shared a number of common interests, such as music, cooking, movies, and doing craftwork.
Tommy also loved Elvis Pressley and the two of them would dance together on a regular basis. He would also let her know how much he loved her, and eventually, the family got accustomed to having him around.
18 months after they started dating, he proposed to her and asked her mother for permission to marry her daughter. The mother didn’t hesitate, she gave her blessings right away.
Other people, however, were not quite so positive about the idea of the two of them getting married. Some said that she wasn’t ready for it and some even asked about their sex life.
Despite the fact that they were criticized openly, they got married in 1995. 250 people came to the wedding, which was a fairytale for them.
They lived together with her family for seven years before moving into their own apartment next door. Her sister also moved along with them.
They have a very strong bond because he listens carefully when she speaks. There is never any type of hidden agenda and they love each other with their whole hearts.
Unfortunately, Tommy was hospitalized in 2020 after he was diagnosed with Alzheimer’s and then got COVID. Due to his declining health, he passed away. That was on January 1, 2021.
When the news was broken to her, she seemed to understand but still was a little confused about the situation. We are just glad that they had almost 30 years together, and they loved each other till the end.
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