Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Céline Dion Shares a Heartbreaking Glimpse Into Her Battle With Illness
Céline Dion’s documentary, I Am: Celine Dion, has been finally released, offering a rare and candid look into her daily struggles. In one particularly vulnerable moment, Dion shares her experience of suffering a terrifying seizure that lasted several minutes.
© I Am: Celine Dion / Sony Music and co-producers
The documentary captures a tense moment as Céline Dion undergoes a medical evaluation. The Grammy-winning artist has been struggling with spasms linked to stiff person syndrome, a rare and progressive neurological disorder.
© I Am: Celine Dion / Sony Music and co-producers
Lying down on a massage table, 56-year-old Dion experiences spasms. Her doctor, Lobo, cautions that these spasms could “lead to a crisis.”
Soon after, the icon begins to experience a severe seizure. Her doctor swiftly calls for another medical team member to give her a medication used to treat nervous system disorders.
© I Am: Celine Dion / Sony Music and co-producers
At that moment, Dion can be heard groaning in pain as she shakes uncontrollably while lying face down. In a startling moment, Dion appears wide-eyed and unable to move independently.
Despite her condition, she remains conscious and manages to signal her awareness by weakly squeezing one of the medical expert’s hands.
© I Am: Celine Dion / Sony Music and co-producers
Following the administration of two doses of a nasal spray, Dion starts to recover from the seizure. The doctor mentions that if she hadn’t responded, they would have needed to rush her to the hospital.
As the My Heart Will Go On singer seems to regain her composure, she confesses to everyone in the room that experiences like these leave her feeling “so embarrassed.”
© I Am: Celine Dion / Sony Music and co-producers
Describing her horrible experience, the singer says, “I don’t know how to express it, like, it’s just … you know, like, to not have control of yourself?” Her doctor, Lobo, explains that the likely trigger for the seizure was Dion’s recent session in the studio where she had been singing, which overstimulated her brain.
Dion replied, “Well, what am I gonna do? If I can’t get stimulated by what I love, and then I’m gonna go onstage and, like, you’re gonna put the pulse oximeter on me, and you’re gonna turn me on my back?”
© I Am: Celine Dion / Sony Music and co-producers
Céline revealed her stiff person syndrome diagnosis back in December 2022. The star had to cancel tour dates in Europe, postpone her Las Vegas residency scheduled for October 2021, and later cancel her North American tour.
We admire Céline Dion’s determination and strength in the face of the formidable challenges she has encountered. Her life has been a journey fraught with difficulties from a young age, and here are seven major struggles that have shaped her into the inspirational icon she is today.
Preview photo credit I Am: Celine Dion / Sony Music and co-producers
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