Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Mom was deeply emotional after her 3-year-old son lost his foot in a lawn mower accident, but he reassured her that everything would be okay.
After a lawnmower accident resulted in the amputation of his left foot, Keirsten Marsico’s little son Joey consoled her by telling her that everything will be alright.
“I was crying naturally when he came out of surgery that night, and he just held my head and said, ‘Mommy, what’s wrong?’” Marsico told PEOPLE his story. “I told him, buddy, I’m really sad.”
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Joey, who was only a few weeks away from turning four, was watching his grandfather Mark DeLuca mow the lawn outside their Whitehall, New York, home on Thursday, May 9, when he made a snap decision that put him in danger.
Keirsten talked about her “active little boy,” the youngest of her two children, saying that “he really loves tractors and enjoys helping with the lawn.” “He approached my dad, who was riding the lawnmower, from behind. My dad threw the mower in reverse before my mom could get to him, and everything happened all at once,” she remembered. “The events that led to what happened were a series of events.”
“It’s been tough on all of us, especially my parents who feel absolutely awful,” Keirsten continues. Specifically, my dad is distraught.
The family believes that Mark DeLuca’s quick use of a tourniquet probably saved Joey’s life. After being transported to Boston Children’s Hospital, Joey had many foot procedures before it was decided to amputate.
Despite the difficulties in his recuperation, Joey’s maturity and upbeat attitude have astounded his family and friends, as well as his caregivers and physicians.
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“What a strong little guy,” Keirsten says. At times, conversing with him is like to conversing with a teenager. He has excellent adjustment.
Joey’s father, Joseph, remarks, “He’s always been that way—very understanding, perceptive of people’s emotions, and adept at coping with situations.” Joseph is reflecting on his son’s exceptional maturity. In addition, he speaks a lot and has a vocabulary that is above average for his age.
The Marsicos, along with their autistic 6-year-old daughter Gianna, settled into a new routine during Joey’s almost month-long hospital stay.
“We tried to maintain a sense of normalcy for my daughter because she attends school,” Keirsten says. “My spouse and I decided that one of us should stay at home with her because she needs routine.”
Joseph stayed stubbornly by Joey’s side, while Keirsten stayed at home. “He’s still by Joey’s side,” Keirsten underlines.
Keirsten reflects on a touching incident by saying, “The other day, as I was leaving Joey, I was crying, and he consoled me again.” I told him it was okay and that I didn’t have to be sad as he wiped away my tears. “I know, but I don’t like leaving you,” I said to him.
The Marsicos take comfort in the knowledge that Joey’s accident was a terrible exception and in their Catholic faith.
“My worst fear is that people will hear this story and think, ‘Why weren’t they watching him?’ or ‘How could they let this happen?’” admits Keirsten, expressing her deepest concern. As his mother, I’ve struggled with it.
She does, however, take solace in her faith, thinking that Joey’s experiences have a greater meaning. “I have to constantly tell myself that everything is happening for a reason. Even if we can’t see it now, God has a plan for him, Keirsten says.
She says, “I would tell someone else it’s an accident if they were in our shoes.” “Accidents happen, and focusing on ‘why’ won’t help—it will only make you feel bad about yourself.”
Keirsten highlights how resilient their family has been in the face of hardship. “We must change and get over what is going on. Our priorities are helping Joey and continuing to be a solid family unit.
After being away from home for almost a month following the accident, Joey was released from the hospital on June 5. Earlier last week, he had his fourth birthday celebration.
His parents are hopeful that he will heal and that he will soon get a prosthetic fitted. They are in awe of Joey’s capacity to communicate his emotions and offer consolation to others during this trying time.
Warmly, Joseph says, “He’s always been such a special little boy.”
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