In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Mom of rare twins with Down syndrome shuts down critics with photo showing how beautiful they are
Twin pregnancies are still quite uncommon, despite a 72% increase in likelihood between 1980 and 2018. Twins are born in about 33 of every 1,000 births.
What are the probabilities of having identical twins? Out of 1,000 births, three to four are identical twins on average. So once more, not very common.
Savannah Combs, age 23, was overjoyed to learn she was expecting twins. She then discovered that they both have Down syndrome, which is also unusual.
Of course, the information was upsetting. Savannah and her husband Justin Ackerman were aware that due of her illness and the state of her children, some people would judge them.
But Savannah finds that to be the same thing that makes them so beautiful.
“It’s very rare what they have, but they’ve been my little gems,” she mentioned.
Savannah, a Middleburg, Florida native, posted videos of her postpartum journey on TikTok with her kids Kennadi Rue and Mckenli Ackerman, and the videos immediately acquired popularity.
Savannah said in one of her videos that she was advised to abort her children because they wouldn’t survive.
She made the choice to keep them and give them a shot.
”Every [prenatal] appointment they were alive was a blessing to me,” Savannah explained.
Her spouse was gone at boot camp when she found out they both had Down syndrome.
When Savannah was admitted to the hospital, she was 29 weeks along with her pregnancy and gave birth to twin daughters. Kennadi Rue and Mckenli Ackerman, identical twin daughters, were born on May 12, 2021.
The twins had to spend a few weeks in the NICU before going home because they were born two months early.
“They’re called mono di twins, meaning that they had their own sacs, but they shared the same placenta, meaning that they were going to be identical,” she said.
“Mo di twins as it is, it’s like very rare. And then you throw Down syndrome on top of it, it’s like one in 2 million.”
They are just like any other youngster, according to Savannah, despite having an uncommon disease.
“They have feelings. They have a beating heart. They know how to talk. They know how to do things you do. They will get there,” she said.
“Like I said, it may be a step behind but they’re going to do it. I’ve learned these kids are feisty little things and happy little things.”Savannah posts wonderful updates on TikTok as each youngster continues to reach their milestones.
“I’m going to let them know that they’re just like us and they’re going to get there as long as they put their minds to it.”
Nevertheless, some people feel compelled to be critical of Savannah and her family. The young mother was forced to respond to some extremely cruel people on social media as a result.
”I wouldn’t want those babies; if mine came out like that, they would be straight up for adoption,” one person wrote to the mother.
Savannah, though, had the ideal response, which she posted on Facebook.
“I said, good thing they weren’t born to you and were born to me. God knew what he was doing by giving these babies to the right parents who would love them regardless.”
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