The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Dakota Fanning, 30, Reveals a Sweet Reason Why Tom Cruise Sends Her a Birthday Gift Every Year
Throughout her more than 20 years career, Dakota Fanning has collaborated with numerous esteemed Hollywood actors. Fanning opened up about her experiences working with such actors as Denzel Washington and Robert Pattinson. Among the many anecdotes she shared, one of the most heartwarming was about her time working with Tom Cruise in 2005’s War of the Worlds.
Tom Cruise gifted Dakota Fanning her first cell phone.
Fanning revealed that Cruise, whom she considers a lifelong friend, has been sending her a birthday gift every year since 2005. In a recent interview for Harper’s Bazaar Fanning shared that her first mobile phone came as a present from Tom Cruise. The actress revealed that her co-star in War of the Worlds gave her a Motorola Razr for her 11th birthday.
“Oh, my God, I was so excited,” she recalled this moment. However, Fanning admitted it might not have been the most practical gift, confessing that she didn’t have anybody to call or text at that time. “You know, I was 11,” she quipped, before adding, “But I loved having it. I loved it. I felt so cool.”
And the gifts didn’t stop at the iconic flip phone.
When Fanning joined Andy Cohen on the engaging show, Watch What Happens Live, she fondly revealed that Cruise didn’t stop his funny tradition. “He has sent me a birthday gift every year since I was 11 years old,” she disclosed, “Beautiful gifts.”
Now, more than a decade later, Fanning sometimes wonders if it will stop. “I always think, ’Oh, when I’m 18, he’ll probably stop. Oh, 21, he’ll stop.’ But every year. It’s really kind.”
Of course, Cohen asked Fanning to divulge what these “beautiful gifts” were, and surprisingly enough, the answer was fairly sensible, with Fanning revealing that “It’s usually shoes.”
It was not the only gift Dakota received from a Hollywood celebrity.
Dakota Fanning shared memories about a gift she got from her Dreamer co-star Kurt Russell. “Kurt Russell gave me a horse,” she said.
Reflecting on her experiences working with big names like Cruise and Russell since childhood, she mentioned that she didn’t feel intimidated, “Because I grew up familiar with being around people who would be considered ’intimidating’ kind of, I think it might’ve numbed that side of me a little. When you’re 8 years old, you’re sort of just getting to know a person as a person and not thinking about all of the other stuff, you know?”
Fans urge Tom Cruise to get anti-aging procedures, as he is deemed unrecognizable at 61. Click here to see photos.
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