Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Straight Family Man Prefers To Wear Skirts And Heels As He Believes ‘Clothes Have No Gender’
Mark Bryan is a robotics engineer who has been married for 11 years and has a daughter. He identifies as straight and chooses to dress unconventionally. Bryan is an American living in Germany, and he doesn’t believe that fashion has to be gendered. You can find Bryan wearing a skirt and heels to work or out anywhere else he goes on any given day.
Bryan said he doesn’t like how limited men’s choices are in the fashion department, especially when it comes to office attire. Men’s pants only come in a few colors, mostly black, gray, dark blue and the occasional pinstripe, and cuts.
The stylish dresser believes that if women are allowed to wear pants, men should be able to wear skirts and dresses as well. Bryan likes how skirts come in many styles and patterns – and many more colors – unlike men’s clothing.
Bryan prefers to mix traditional gender looks by wearing masculine attire on his top half, like a blazer and tie, and traditionally feminine attire on the bottom half. He will typically wear a pencil skirt and four-inch heels on the bottom.
Wearing high heels is no problem for Bryan. He first learned how to do it when his college girlfriend asked him to wear high heels while dancing with her so that they were on the same level. They continued this for over a year.
Bryan doesn’t let stereotypes or assumptions stop him from dressing in a way that brings him joy. He challenges expectations and does so unapologetically. Keep reading to hear what Bryan has to say about his fashion choices.
Bryan has a very clear idea about how he likes to dress. He told Bored Panda: “To me, clothes have no gender. I prefer skirts to dresses. Dresses don’t allow me to mix the genders. I prefer a ‘masculine’ look above the waist and a non-gendered look below the waist. It’s all about clothes having no gender.”
He continued: “I am old enough to remember that in school, the girls could not wear pants. Pants have now become a non-gendered article of clothing. So why can’t skirts and heels be non-gendered? Besides, men wore heels before women did. Maybe not today’s stiletto-style heels, but men did wear heels before women.”
Bryan is correct about that. High heels can look back on a long history. Although historians and archaeologists cannot date their invention clearly, they have been around at least since the 10th century. And they were not a fashion statement at first. No, the first recorded use of high heels was eminently practical: the Persian cavalry wore boots with heels, called a kalash or galesh, that made it easier for them to keep their feet inside their stirrups. This is, by the way, the same reason why cowboy boots have a small heel as well!
Since owning a horse was a sign of wealth, only well-off men could afford to wear these high-heeled boots. The use of them slowly spread across Europe, and high heels heels became one of the fashion signs of rich noblemen or traders. In fact, following the Great Schism of the Christian Church in the 11th century, even the pope wore high heels.
It wasn’t until several hundred years later that fashion slowly changed. During the 18th century, cultural concerns in Europe came up about the distinction between males and females and talk about what men and women should wear arose. This is the point in time where the belief that fashion is something effeminate and frivolous that “real men” shouldn’t care about hails from. Due to these changing beliefs, men largely abandoned high heels heels, as they were seen as impractical and mere accessories.
Bryan is one of the examples of how high-heels are slowly coming back as an accepted form of footwear for men. Although the engineer champions the option of wearing high-heeled shoes for men, he understands many people will look twice when they see him. He compares his style choices to someone who chooses to dye their hair bright colors. He explained:
“Take a person with bright green hair. Green hair is not normal. You look up and see this person, your mind tells you it’s a person with green hair, you think to yourself, that’s odd or interesting, then you go back to do what you were doing and don’t give it another thought. I believe this is the same when people see me in a skirt and heels.”
Bryan doesn’t have to struggle to find skirts and heels that fit him either. He wears a size 8 in skirts, and with smaller feet for a man, his shoe size in heels is 8.5. If you know a man who is considering trying out wearing heels and skirts too, Bryan suggests starting with a lower heel until you feel more comfortable walking in high heels.
What do you think of Mark Bryan’s style choices? Do you know any men who would try walking in high heels? Let us know, and be sure to send this along to your friends and family.
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