When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
My Wife Found Sweaters She Knitted for Our Grandkids at a Thrift Store – She Was So Heartbroken, I Had to Teach Them a Lesson
I just discovered that occasionally extreme tactics are necessary to get your message across to someone. Grounding my grandchildren for what they did to my wife wasn’t going to be a sufficient lesson in this case. I set them a challenging task to ensure their redemption. I, Clarence (74), have always thought my wife Jenny (73), is the loveliest and most kindhearted person. This was particularly true with regard to our grandchildren. She knits them exquisitely detailed sweaters every year for their birthdays and Christmas. She puts all of her heart into this tradition. She would frequently begin new initiatives more earlier than necessary.
This was done to guarantee that every child received a unique item created particularly for them. She would make the kids stuffed animals for their birthdays. Maybe a blanket for the grandchildren who are older. We just had a trip and decided to stop by our neighborhood thrift store last week. For our landscaping project, we were trying to find some old-fashioned pots. What was supposed to be a relaxing trip became an unforgettable, heartbreaking experience!Something I wish we could take back from our shared history. My wife stopped as we were browsing the aisles. Her gaze fixed on something, causing her to momentarily stop. “What the heck is that? She questioned, gesturing with a quivering finger, “Am I seeing things? The sweaters she had crocheted for our grandchildren were hanging there among a gazillion other trashed stuff! All of them were for sale! Among them, there was a blue-and-grey-striped one that was definitely the one Jenny made for our oldest grandchild last Christmas.
It was clear from the expression on her face. She stretched out and caressed the fabric softly, and her heart broke. She tried to hide her pain with a grin and a repression of tears. Her voice was barely audible as she said, “It’s okay, I understand that kids might be embarrassed to wear grandma’s sweaters.” I could hardly contain my emotions as I drew her closer for an embrace, realizing how hurt she was. No, this wasn’t acceptable, and unfortunately for our family, my wife was more understanding than I was. They committed a heartless, destructive, and blatantly cruel act! Even though she maintained her composure, I couldn’t help but feel furious! Once I was sure she was asleep, I went back to the thrift store that evening and bought back everything she had made! I had made up my mind to put this right. I made the decision to impart a significant life lesson to our grandchildren without even speaking to my wife! One that would instill in them the value of showing gratitude for future blessings. I made a package for each grandchild the following day. I put wool, knitting needles, and a basic set of knitting instructions inside each. I added a picture of the sweater they had thrown away along with a severe note that said, “I know what you did.” You had better start knitting your own gifts now!”Grandma and I are coming for dinner, and you better be wearing her presents,” I said in my note. Alternatively, I’ll notify your parents and you won’t receive any further gifts for birthdays or Christmas. As one could guess, there was a wide range of reactions! A few of the grandchildren apologized sheepishly over the phone. They acknowledged that they were unaware of the significance of these gifts. Some remained mute, maybe feeling awkward or not knowing what to say. But the point had been made. When dinnertime finally arrived, there was a palpable sense of excitement. Our grandkids arrived one by one. All of them wearing the sweaters that nobody thought were worthy. To be very honest, some of the art they produced was absurdly poor! The one short design and one long hand made me chuckle uncontrollably! Some sweaters were obviously dropped mid-project, while others were simply too large! Not a single reproduction could have done MY Jenny’s original work justice. When sincere regret was expressed through their apologies, the tension subsided. Our oldest grandchild stated to their parents, “We are so sorry for taking your gifts for granted, Grandma,” while their parents watched. “We swear never to give away anything you’ve lovingly made for us ever again.” They made an attempt at knitting. They became aware of the passion and work that went into every stitch as a result. “Our oldest grandchild admitted that this was harder than he had anticipated, Grandpa.”
He continued tugging at the sleeves of his hurriedly constructed attempt as he spoke. Another person said, “Yeah, I’m sorry, Grandma,” with wide eyes. “It took me hours to finish one section of a scarf!” Bless her heart, my wife pardoned them, giving each one her customary warmth and compassion. “I’m amazed you got them to do this much!” Jenny loved our grandchildren and turned to face me. I needed to take action, my darling. I couldn’t allow them to believe that your gifts were just throwaway objects. I knew I had made the right decision when we embraced and she opened her warm heart to me. The laughter increased and the mood lightened as we ate dinner. This difficult lesson bonded everyone. It served as a helpful reminder of the importance of recognizing and appreciating one another’s work. Ultimately, our grandchildren gained knowledge about love, respect, and the elegance of a handcrafted gift in addition to learning how to knit a basic stitch. My wife felt better when she saw that her efforts were eventually recognized. I discovered how much of an impact she had on bringing our family together. The grandchildren added one more thing as we were wrapping up our dinner: “We promise to cherish our handmade gifts forever.” A promise that brought my wife more warmth than any sweater could have! I said to them, “I have one last surprise for you all,” before I left. I ran to the car and returned with a bunch of big plastic bags. “Open them,” I told our grandchildren. When they discovered every sweater Jenny had given them, they were all beaming with happiness. When they transitioned from their awful attempts at knitting to the flawless sculptures my wife had made them, they were like completely different persons. “Grandma and grandpa, thank you so much!” they exclaimed as they gave us a warm hug before we left. The spouse of a woman in the following tale was in need of some important life lessons. Before she put her foot down, he had developed the poor habit of making purchases—big and small—without getting her approval.
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