Emiliana Rodriguez’s childhood memories are a blend of joy and sorrow, intertwined with the haunting specter of a silent killer lurking in the darkness. Growing up in Bolivia, she vividly remembers evenings spent watching her friends play soccer under the moonlit sky. But one fateful night, the game was abruptly halted by the tragic passing of a player, a victim of the insidious disease known as Chagas.
For Rodriguez, the incident cast a long shadow of fear over the night. In the folklore of her upbringing, Chagas was depicted as a monstrous presence that emerged under the cover of darkness, claiming lives without warning. This narrative became all too real when she learned that her friend had succumbed to this silent and silenced disease, one of the thousands who perish annually from its grasp.
Now, at 42 years old and living in Barcelona for over two decades, Rodriguez still grapples with the specter of Chagas that haunts her past. “The terror would grip me at night”, she confides. “There were times when sleep eluded me, fearing that I might never wake up again.”
Her own confrontation with the disease came to light eight years ago, during her first pregnancy. The revelation of her status as a carrier sent shockwaves through her, evoking memories of her childhood trauma. “I felt paralyzed with fear”, she recalls. “The thought of what might happen to my unborn child kept me awake at night.”
Yet, despite the looming threat, Rodriguez embarked on a journey of treatment to safeguard her child from the same fate. Thanks to medical intervention, her daughter emerged unscathed, spared from the clutches of the silent killer that had haunted her family’s history.
Rodriguez’s story is not unique. Across the globe, individuals like Elvira Idalia Hernández Cuevas of Mexico find themselves thrust into the unfamiliar terrain of Chagas disease. For Idalia, the journey began with a routine act of altruism, donating blood. Little did she know that this act would expose her to a hidden danger lurking within her own community.
“When I first heard the diagnosis, I was terrified”, Idalia recounts. “I had never even heard of Chagas before, let alone imagined that I could be its victim.”
Her experience echoes a broader reality, one where awareness of Chagas remains dangerously low, even in regions where the disease exacts its heaviest toll. Originating in the Americas, Chagas has since spread its reach to other continents, ensnaring millions in its silent grip.
In the face of this silent epidemic, efforts to combat Chagas are hindered by a lack of awareness and resources. Outdated treatments offer little solace to those afflicted, with medications often proving toxic and ineffective, particularly for newborns.
Yet, amidst the darkness, there are glimmers of hope. Champions like Emiliana Rodriguez and Elvira Idalia Hernández Cuevas are raising their voices to break the silence surrounding Chagas. Through advocacy and awareness campaigns, they seek to shine a light on this neglected disease, urging communities to confront the monster lurking in their midst.
As the world grapples with the challenge of eradicating Chagas by 2030, the road ahead remains daunting. But with each voice raised in solidarity, the hope for a future free from the shackles of Chagas grows stronger.
In the battle against this silent killer, knowledge is our most potent weapon. By arming ourselves with awareness and understanding, we can confront Chagas head-on, ensuring that no more lives are claimed by the darkness.
Jase and Missy Robertson’s journey: Overcoming obstacles and finding strength
Mia Robertson, the youngest daughter of Duck Dynasty’s Jase & Missy Robertson, has been born with a condition known as cleft lip and palate, a gap in the upper lip that can involve the gum as well.
The U.S. Centers for Disease Control and Prevention shares that about one in every 1,600 babies is born with a cleft lip with a cleft palate in the U.S.
Because of her condition, sweet Mia, who is now 18 years old, has been forced to undergo 13 surgeries, with the 14th taking place just recently. The family truly hopes this would be Mia’s last procedure before her problem is finally solved.
Throughout every surgery, the young girl remains positive. What’s most, she hopes she serves as inspiration for other young children who are born with the same condition. On her own initiative and with the help of her family, Mia established the Mia Moo Fund in order to assist in making certain that each and every child wears a smile on their face.
“One of the functions of the Mia Moo Fund is to spread awareness of the cleft lip and palate journey,” Missy Robertson told Christian Post. “The other one is to help with medical funds for the parents and the families living right here in America.”
On his podcast Unashamed, Jase Robertson shared an update on Mia’s condition and said that his daughter is recovering well.
“She’s doing great. She’s turned a corner,” he said, and then added, “Everything seems great, seems to be fine.”
“Surgery went a little longer than expected, but she is home and recovering,” the loving father told his podcast listeners. “Thank you for praying for her and for our family. She is a champion!”
Before the surgery took place, Missy spoke of her daughter’s condition and explained that she had been constantly asked about the number of procedures Mia would need to undergo in the future. “There is never any other response than ‘We just don’t know,’” Missy said. She then added that they rely on God for assistance. “Since she is 18 now, she is taking the lead in all the discussions and medical forms. It’s been a little strange,” Missy wrote. “But it’s just another reminder to lean on the Lord and that I’m not in control.”
Mia also hopes that she’s at “the finish line.”
“Hopefully the last time I’ll see my doctors in this setting! It’s been a long road but we are at the finish line,” brave Mia said.
The Robertson’s have also been preparing for a new addition to the family as they open the doors to their hearts and home for a child whose mother was unfit to take care of.
We wish Mia speedy recovery.
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